Bodies in Conflict
Understanding Women’s Experiences of Polycystic Ovarian Syndrome
Keywords:
Polycystic Ovarian Syndrome, healing, femininity, health, gender, body-mappingAbstract
Polycystic Ovarian Syndrome (PCOS) is a complex medical condition that impacts women’s bodies and identities, especially in relation to gendered expectations of health and femininity. Drawing on feminist and social constructionist frameworks, this study uses ideas of “doing gender” and “undoing gender,” in connection with the concept of medicalization, to investigate the relationship between self-perception, medical authority, and gender norms. This qualitative study examined the embodied experiences of Indian and Indo-Canadian women living with PCOS in Edmonton, Canada, using semi-structured interviews, focus group discussions, and body mapping as the primary methods of data collection. According to the findings, women establish a hierarchy of symptoms, giving external symptoms like acne and hirsutism precedence over issues about fertility. This hierarchy is a reflection of internalized ideas of feminine appearance and also a rejection of feminine functionality focused on reproductivity. The women’s choices of treatment, especially with regard to hormonal contraceptives, reflect a negotiation between defying and adhering to sociocultural and biological standards of womanhood. This study challenges conventional medicalized discourses on PCOS by emphasizing women’s narratives, and advances a more comprehensive understanding of gender, health, and embodiment. It emphasizes the necessity of more patient-centered approaches to recognize and validate opportunities for healing that are not based on predetermined and essentialist notions of health and femininity.
References
Bartky, Sandra Lee. 2010. Foucault, Femininity, and the Modernization of Patriarchal Power. In The Politics of Women’s Bodies: Sexuality, Appearance, and Behavior, 3rd ed., edited by Rose Weitz, 73–92. Oxford University Press. (Original work published 1985).
Bennett, Christy R., Natalie Shive, and Helen Coats. 2020. “What Mattered Then, Now, and Always: Illness Narratives from Persons of Color.” Journal of Hospice and Palliative Nursing 22(5): 392–400. doi.org/10.1097/NJH.0000000000000682.
Butler, Judith. 2004. Undoing Gender. Routledge.
Clandinin, D. Jean, and F. Michael Connelly. 2000. Narrative Inquiry: Experience and Story in Qualitative Research. Jossey-Bass.
Chrisler, Joan C. 2004. From Menarche to Menopause: The Female Body in Feminist Therapy. Routledge.
Creswell, John W., and Cheryl N. Poth. 2018. Qualitative Inquiry and Research Design: Choosing Among Five Approaches. 4th ed. Sage Publications.
Deutsch, Francine M. 2007. “Undoing Gender.” Gender & Society 21(1): 106–27. doi.org/10.1177/0891243206293577.
de Melo, Andréia S., Rogério M. Dos Reis, Ricardo A. Ferriani, and Claudia S. Vieira. 2017. “Hormonal Contraception in Women with Polycystic Ovary Syndrome: Choices, Challenges, and Noncontraceptive Benefits.” Open Access Journal of Contraception 8: 13–23. doi.org/10.2147/OAJC.S85543.
Ellerman, Jennifer Lynn. 2012. Don’t Blame It on My Ovaries: Exploring the Lived Experience of Women with Polycystic Ovarian Syndrome and the Creation of Discourse. PhD diss., University of South Florida.
Esteban-Gonzalo, Sergio, Petula Sik Ying Ho, M. Elena Aparicio-García, and Laura Esteban-Gonzalo. 2020. “Understanding the Meaning of Conformity to Feminine Norms in Lifestyle Habits and Health: A Cluster Analysis.” International Journal of Environmental Research and Public Health 17(4): 1-14. doi.org/10.3390/ijerph17041370.
Fabricius, Anna. 2020. “Unfeminine, Unhealthy and Unusual: Women’s Characterizations of Their PCOS Bodies.” PhD diss., University of Guelph.
Fahs, Breanne. 2014. “Genital Panics: Constructing the Vagina in Women’s Qualitative Narratives about Pubic Hair, Menstrual Sex, and Vaginal Self-Image.” Body Image 11(3): 210–18. doi.org/10.1016/j.bodyim.2014.03.002.
Foucault, Michel. (1973) 1993. The Birth of the Clinic: An Archaeology of Medical Perception. Translated by A. Sheridan. Routledge.
Frank, S. 2020. “Queering Menstruation: Trans and Non-Binary Identity and Body Politics.” Sociological Inquiry 2(2).
Government of Canada, I. A. P. on R. E. 2023a, January 11. Tri-council policy statement: Ethical conduct for research involving humans – TCPS 2 (2022). Government of Canada, Interagency Advisory Panel on Research Ethics. https://ethics.gc.ca/eng/policy-politique_tcps2-eptc2_2022.html.
Gundumogula, M. 2020. “Importance of Focus Groups in Qualitative Research.” International Journal of Humanities and Social Science 8(11): 299–302.
Hennegan, Julie, Anna K. Shannon, Jillian Rubli, Karen J. Schwab, and Gabriela J. Melendez-Torres. 2019. “Women’s and Girls’ Experiences of Menstruation in Low- and Middle-Income Countries: A Systematic Review and Qualitative Metasynthesis.” PLOS Medicine 16(5):1-25. doi.org/10.1371/journal.pmed.1002803.
Irni, Sami. 2017. “On the Materialization of Hormone Treatment Risks: A Trans/Feminist Approach.” Body & Society 23 (2): 106–31. doi.org/10.1177/1357034X17697365.
Jarvis, Chelsea. 2021. Narratives (In)Fertility: Organizing and Embodiment in Silence and Stigma. Purdue University Graduate School. doi.org/10.25394/PGS.14962890.v1.
Kitzinger, Celia, and Jo Willmott. 2002. “‘The Thief of Womanhood’: Women’s Experience of Polycystic Ovarian Syndrome.” Social Science & Medicine 54(3): 349–61. doi.org/10.1016/S0277-9536(01)00034-X.
Lucidi, Robert S. 2016. “Polycystic Ovarian Syndrome Clinical Presentation.” Medscape. https://emedicine.medscape.com/article/256806-clinical?form=fpf
Lys, Candice, Deborah Gesink, Catherine Strike, and June Larkin. 2018. “Body Mapping as a Youth Sexual Health Intervention and Data Collection Tool.” Qualitative Health Research 28(7): 1185–98. doi.org/10.1177/1049732317750862.
McNay, Lois. 2013. Foucault and Feminism: Power, Gender and the Self. John Wiley & Sons.
Meyer, A. E., and D. von Zerssen. 1960. “About Methods for an Initial Psychosomatic Investigation of Clinical Syndromes (Exemplified by Research on the So-Called Idiopathic Hirsutism).” Advances in Psychosomatic Medicine 1: 70–77.
Milena, Z. R., G. Dainora, and S. Alin. 2008. “Qualitative Research Methods: A Comparison Between Focus-Group and In-Depth Interview.” Annals of the University of Oradea, Economic Science Series 17(4): 1279–83.
Oksala, Johanna. 2004. “Anarchic Bodies: Foucault and the Feminist Question of Experience.” Hypatia 19(4): 125–19. doi.org/10.2979/HYP.2004.19.4.97.
Pecis, Lara. 2016. “Doing and Undoing Gender in Innovation: Femininities and Masculinities in Innovation Processes.” Human Relations 69(11): 2117–40. doi.org/10.1177/0018726716634445.
Pfister, Gertrud, and K. Rømer. 2017. “‘It’s Not Very Feminine to Have a Mustache’: Experiences of Danish Women with Polycystic Ovary Syndrome.” Health Care for Women International 38(2): 167–86. doi.org/10.1080/07399332.2016.1236108.
Pruthi, B. 2019. “One in Five Indian Women Suffers from PCOS.” The Hindu, September 26. https://www.thehindu.com/sci-tech/health/one-in-five-indian-women-suffers-from-pcos/article29513588.ece.
Shildrick, Margrit. 2002. Embodying the Monster : Encounters with the Vulnerable Self. 1st ed. Sage.
Snyder, Bethany S. 2006. “The Lived Experience of Women Diagnosed with Polycystic Ovary Syndrome.” Journal of Obstetric, Gynecologic, and Neonatal Nursing 35(3): 385–92. doi.org/10.1111/j.1552-6909.2006.00047.x.
Tandoğan, Özden, Eda Yakit Ak, Arzu Akdemir, Ümran Oskay, and Nihal Callioglu. 2024. “Effect of Polycystic Ovary Syndrome on the Life Quality of Young Women.” Revista da Associação Médica Brasileira 70(4): 1-5. e20231368.
Thompson, J. Kevin, and Eric Stice. 2001. “Thin-Ideal Internalization: Mounting Evidence for a New Risk Factor for Body-Image Disturbance and Eating Pathology.” Current Directions in Psychological Science 10(5): 181–83. doi.org/10.1111/1467-8721.00144.
Thorpe, Holly. 2016. “Athletic Women’s Experiences of Amenorrhea: Biomedical Technologies, Somatic Ethics, and Embodied Subjectivities.” Sociology of Sport Journal 33(1): 1–13. doi.org/10.1123/ssj.2015-0030.
Vrbikova, Jana. 2012. “Polycystic Ovary Syndrome: Why There Is No Cure.” Expert Review of Endocrinology & Metabolism 7 (5): 475–77. doi.org/10.1586/eem.12.41.
West, Candace, and Don H. Zimmerman. 1987. “Doing Gender.” Gender & Society 1(2): 125–51. doi.org/10.1177/0891243287001002002.
Witchel, Selma F., Sharon E. Oberfield, and Andrea S. Peña. 2019. “Polycystic Ovary Syndrome: Pathophysiology, Presentation, and Treatment with Emphasis on Adolescent Girls.” Journal of the Endocrine Society 3(8): 1545–73. doi.org/10.1210/js.2019-00078.
Wright, Peter J., Robert M. Dawson, and Christine F. Corbett. 2020. “Social Construction of Biopsychosocial and Medical Experiences of Women with Polycystic Ovary Syndrome.” Journal of Advanced Nursing 76(7): 1728–36. doi.org/10.1111/jan.14371.
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